I had hoped to upload some pictures of my weekend but my technical skills have deserted me under the influence of steroid sleeplessness so you'll just have to put up with text.
Treatment continues to go well. No more allergic reactions and everything on Friday and yesterday went smoothly. I will be having more treatment including another lumbar puncture tomorrow and blood tests on Saturday. The steroids do at least support my blood results which have been really good. Last Friday I had my first piece of pink steak for 8 months. It was fantastic! (Sorry about the food obsession - that is also the steroids!)
I had a visit from my oldest friend on Saturday and Sunday. Caroline and I met on our first day at Oxford High School in September 1969 and have been friends ever since in spite of the fact that her family emigrated to Edmonton, Canada in 1970 and she has lived in the US for over 30 years. I last saw her 6 years ago but it might as well have been yesterday. Over the years we have probably seen each other on average once every 3 years and when Andrew used to go on business to the West Coast he often used to stay with her.
It was good to have the mental boost as the side-effects were pretty revolting over the weekend - now much improved. Caroline's current passion is birding so we went for a couple of walks which were rather like going out with a small child. Every 10 paces she'd stop to look through the binoculars or take photos - to be honest about my level over the weekend.
I seem to be managing the steroids ok at the moment although I don't sleep much, usually about 3 hours/night when I am taking them (which is Tuesday to Friday). However, being at home is much better because I can work off the steroid highs on the housework or tidying, which is useful and satisfying. Also I find even if I don't sleep I can at least stay in bed and rest comfortably until my brain takes off at about 6am.
Worst side-effect this week is the neuropathy which makes my fingers cold and tingly and my feet likewise. It'll pass though.
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