So, I have now been without my Hickman line for just over two weeks. The scars and bruises are fading and it is so nice not to have to tape it up in a plastic bag to take a shower. When I went for my consultant appointment on Tuesday I had to give blood in the usual way, from an arm vein - that was a bit of a shock, but that will be the new normal. The appointment went fine, blood results good, consultant pleased, come back in two weeks.
Adjusting to not being under constant care from the hospital has been a lot harder. My life for the past 10 months has revolved around the treatment and at least 3 trips per week to Addenbrookes. It is slightly odd to be able to be at home every day and not rush off to the hospital. I am in discussions over going back to work but right now I am in a type of limbo - not at work, not under constant treatment, not on holiday.
On the plus side there is time to garden, walk to try and get fit again, and get on with the quilt. I am hand quilting it which takes a lot of time, but since I do it on my lap it is also quite restful. Getting fit is important as I have signed up to walk 5km in the Cambridge Race for Life on 17 July. Judging by my recent walks I should manage it in under an hour, which is ok. I've also been out on my bike for a couple of short rides. I was pleased not to have any balance problems but horrified at the lack of strength in my leg muscles!
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