Ok. I have now discovered that this drug - Nelarabine - is stealthy. I feel fine the day I get it, if a little tired in the evening, but the next day - wham! On Tuesday I woke up feeling really tired and couldn't get up till 10am and then had legs like lead all morning. This morning the effect was about twice as strong: I have just managed to get out of bed at 13:45, feel really quite wobbly and also have strange crawling sensations in my limbs. According to the sheet on side effects, fatigue affects 50% of patients and the crawling/tingling sensations are also quite common. Thanks God the last dose is tomorrow as I suspect that I will feel much the same, if not worse, on Saturday.
Sadly it is also a dull, drizzly day here - not even a little bit of sunshine to cheer things up. So I will have to find things to do that don't require too much energy or brainpower and probably spend a large fraction of the afternoon on the sofa!
Encouraging sing - I managed to go to choir practice for the first time last night. It was lovely to be there and even nicer to discover that I can still sing, even if not much power.
Sense of humour still intact, you'll all be pleased to hear.
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