Posts 29 August-6 September

Thought I'd fill you non Facebookers in on last week's posts...
Saturday 29 August
First day at home...woke at 06:30 and got up, went downstairs and did my email, then took Andrew a cup of tea (putting it carefully up a few steps at a time so as not to spill it). His first cup of tea in bed for over a month! The rest of the day has been lazier involving shower, breakfast, lazing around while Sheila George came and Rachel-sat so Andrew could go to Morrisons, lunch of boiled potatoes and butter and cold meat (my mother would have loved that) and then more lazing on the sofa. The Vicar and the Rural Dean have both popped in but otherwise we have been very quiet. Looking forward to asparagus and then cottage pie for supper and hopefully a good night's sleep.
I am hoping that I will be able to have a little walk around the garden tomorrow to admire the sunflower and courgettes and other things.


Sunday 30 August
Another good day though much more tired...
Woke at 05:30 and turned over for 2 minutes till 07:30! Andrew got his 2nd cup of tea in bed...I have definitely been slower today: much sitting on sofa, going back to bed for a nap after lunch, back on sofa now. Andrew's mother Gladys came over around noon and stayed for lunch and till about 5pm. We had fantastic baked salmon for lunch with saute potatoes and sugarsnap peas - I may not be able to eat much at once but I am really ...enjoying the variety of food Andrew is preparing. I hope he is enjoying my enthusiasm! No other visitors, but honesty today that was enough. I had a lovely nap after lunch and have just written a couple of cards and checked FB. I wonder what is on the menu for supper...It's been quite wet here so I didn't get my walk outside - it can wauit.
Tomorrow Phillip George is giving me a lift to my first outpatient's appointment. Andrew will pick me up when I am done.
Thanks for all the lovely messages...


Monday 31 August - first day of trekking to Addenbrookes for outpatient treatment
Phillip George kindly came at 09:15 to give me a lift to Addies. We had a nice chat about guitars and other stuff in the car. Outpatient appt was deeply dull - blood tests, 1 hour of anti-fungal drip and then hanging around waiting for the blood results so that they could decide whether I could go home or not. I was so hungry I went and raided Burger King for fries!
Andrew came to fetch me a...t just after 1pm and we had a very late lunch at around 3:30 after I had had an hour's nap.
Iain Strath and Anne came to visit and I am now contemplating supper - 'red' spag with pappardelle and a yellow courgette from the garden, followed by Boursin, which amazingly for a soft cheese is made with pateurised milk and therefore safe fro me to eat (sorry, food is high on my list of priorities at the moment!)
No appts tomorrow.


Tuesday 1 September - my birthday!
I have had a lovely birthday! I had some great cards and gifts (mention must go to the shocking pink jacket!), saw Eleanor and Becky for lunch (Spanish omelette), had a yummy Victoria sponge birthday cake (courtesy of Becky) woke from a snooze to find an old friend here for supper (Wiener schnitzel after a starter of avocado, salmon and cold pappardelle) and am contemplating sloping off to bed in the next half hour.


Wednesday 2 September

Today's appointment was a bit pants - I was there all day while they worked out that I had a thrombosis in the vein running along the left shoulder and down the left arm (thanks to Harley in ultrasound), and they then couldn't decide whether to do the bone marrow test yesterday or today. I arrived home about 6pm absolutely shattered and slept on the sofa for an hour and then went to bed about 9pm after supper. They gave me anti-coagulants for the thrombosis which have to be self-injected (ok, but more painful that the other injections I have). At least it meant that I was right to mention the tiredness and slight discomfort around the Hickman site.


Thursday 3 September

Another long day at Addies today - arrived at 08:30 courtesy of Hazel and finally escaped just before 5pm! I had a migraine when I got there this morning (my first ever) so they sent me for a CT scan to check that I did not have a bleed on the brain (I didn't). Finally got my bone marrow test after lunch - they had been waiting for the blood results and the CT scan - and then they sent me to ophthalmology to check that the leukaemia hadn't got into my retina (it hasn't). I was very pleased to get home and am looking forward to chicken breasts in lemon for dinner. I feel slightly less like a limp dish rag this evening and am hoping to only spend the morning at Addies tomorrow!


Friday 4 September
Short day at Addies today. In with Sheila Prest (thank you!), blood tests, anti-fungal medication, visit from colleague Adria, and home with Andrew at 2pm. Had a visit from a Guiding friend from Toft, Lucy, whose Aunt Phil had knitted the large colourful squares in my blanket of love. Looking forward to Spaghetti Bolognese with yellow courgettes from the garden.